This is a hidden gem in the neighborhood, Tanisha helped me and was so patient with me. I will definitely be back if I need more assistance of any kind.
January 2020
A disease which you’re born with and it feels like 100 men running through your body scratching your bones with glass. Meanwhile those who are not sick looks at you as though your begging for pain killers like a drug addict. What your excuse for not supporting and assisting for cure
September 2019
I enjoy working with everyone and going out to provide Chair Massage at the annul Sickle Cell Walk. Seeing the support in crowds makes me feel good about my participation, I look forward to next year.
The Sickle Cell/Thalassemia Patients Network (SCTPN) is a charitable organization established in 1985 as an adult support group for individuals living with inherited blood disorders. SCTPN incorporated in the State of New York April 1992, and received its tax-exemption thereafter.
The mission is to improve the quality of life for individuals living with sickle cell disease (SCD) and thalassemia, and their families.
Through education, advocacy, care coordination, and referral to needed services, SCTPN has been successful in diminishing the negative social, academic, economic, political impact these inherited disorders have on entire communities.